Nina

You and I
We are two of the
Same.

To me,
You're not
Different
Or awkward or strange.

It's uncanny
Everything I can see
Because looking at you
I see so much of me.

It's in your smile.
It's in your gait.
It's in your wish
To fit someplace.

You are so unique
And so wonderfully made
I wish you could see it.
I wish all else would fade.

You are one of my kind
Tense muscles and all
Be yourself with pride
Keep your head up.
Stand tall.

Contradiction in Terms

Being disabled means
Connection
To community.
It is part of my identity.
It is part of what makes me
Me.
Being disabled means
Reaching out to tell others
That we are not alone.
It means listening to each other,
Being disabled means
Having to fight,
It means being an advocate.
It means not backing down.
It means being strong
When being disabled
Also means
Inherently
Being more vulnerable.
We must be both.
We have no choice.
Be connected.
Be you.
Reach out.
Listen.
Fight.
Advocate.
Do not back down.
Be strong
While you are also vulnerable.
A contradiction in terms,
And also a truth...
Also my truth,
And how I live
As a disabled woman.

Shifting Gears

Wheels are turning

Both in my head and 

On the ground

Because that is how I move -

 I am not wheelchair bound.

Back to a Love

It has been so long
Since I have cared -
Since I have dared -
To let my fingers
Do the speaking.
It is so easy
To let time pass
And think, alas,
This love is gone.
So, honey,
Let's move those
Poems somewhere else
Somewhere that's lacking
All the whistles and bells.
But moving the love
Doesn't make it unlovely.
Relocation doesn't
Remotely remove me
From my devotion to letters
To words and to poetry.
I need it like I need
So many great things.
So, let's start again
Let's see what this night brings.

What Happened When I Spoke Out About Damaging Disabled Representation in the Media

When you say,
"Reading about problematic representation is draining.
Just admit you like the show.  You'll be happier."

I hear,
"Just ignore it
Like I'm ignoring you."

When you say,
"This is the only show that has
This much disabled representation."

I hear,
"It's enough that you exist on television.
It doesn't matter if it's harmful."

When you say,
"We [able-bodied people] already said
Disabled people should speak for themselves."

I hear,
"Your voice
Doesn't matter."

When you say,
"You'e probably not going to get what you want
In terms of agency and disabled characters."

I hear,
"Disabled people
Don't have value."

When you say,
"I think it's absolutely fine to want more depth and love
For characters with disabilities, but you need to understand
That things grow slowly in that regard.
Bad representation still makes being disabled more,
You know...  Acceptable."

I hear,
"You
Are not acceptable."

When you say,
"This show should not be
The end all of representation problems...
Because it has better representation than any other show."

I hear,
"Don't blame a show
That harmfully stereotypes
Better
Than all the other shows."

I hear,
"Stop talking."

I hear,
"Close your mouth."

I hear,
"It's enough
That you exist around me."

I hear,
"It doesn't matter
That able people
Are representing you
Behind the scenes
And on the screen."

I hear,
"It doesn't matter
That we are the heroes.
That every single storyline that
A character like you possesses
Is steeped in condescention
And stereotypes.
That you always need helping
And saving,
Because someone like you could never
Help
Or save."

I hear,
"Be grateful for the able words
And the able actors
Portraying the disabled experience.
Be grateful that when a disabled character
Is actually played by a disabled actor,
All the able characters
Still
Speak
For them
And are praised for it."

Just like you
Are speaking for me now.
Art imitating life
Imitating art.
Who is praising you this week?

I hear
Because you won't let me speak.

I'm here
But is that enough?

I hear
But I am not heard.

You turn up the volume,
"Not another word."